International Federation of Marfan Syndrome Organizations
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Argentina
Dra. Mónica M. Segura
Charcas 3391 3º piso office 32
Buenos Aires, Republic Argentina
email:
Australia
Queensland, Australia
Susanne Hemphill
Marfan Association, Queensland Branch
P.O. Box 294
Sumner Park, Queensland 4074
Australia
Telephone: ++61 7 3376 6160
Fax: ++61 7 3279 1927
e-mail: Victoria, Australia
Marfan Association Victoria Inc.
Sally Ferguson, President
PO Box 42
Sunbury, Victoria. 3429
Australia
Telephone: ++61 3 5784 1357
Fax: ++61 3 5784 1357
e-mail:
New South Wales, Australia
Marfan Support Group
Trudy Whaite
Syndey - ++61 (02) 8230-0424
Belgium
Yvonne Flemal - Jousten
Association Belge du Syndrome de Marfan
27A, rue Residence Air Pur
B 4623 - Magnee
Belgium
Telephone: ++32 4 355 13 59
e-mail:
Brazil
Brazilian Marfan Association (Marfan Brasil)
Flavia Gioia, President
E-mail:
Contact:
Adriano Rodrigues
Rua dos Juritis - Quadra 07 - Apt.403 - Ed. Mirela
Jardim Renascença
Sao Luis, MA, Brazil
CEP 65075-240
Tel: 55 98 3236 0455
Cell phone: 8129 9224
E-mail:
Canada
"Making A Difference"
"Le Pouvoir de changer les choses"
Eva Theofilopoulos, Executive Manager
Josipa Paska, Director
Central Plaza Postal Outlet
128 Queen St. S., P.O. Box 42257
Mississauga Ontario L5M 4Z0
Canada
Telephone: (905) 826-3223; FAX: (905) 826-2125
e-mail:
Website:
China
Lydia Chen
e-mail:
Costa Rica
Michelle Gómez
Tel: (506) 817- 0001
E mail:
Cuba
Carolina Douglas
Cuban Association of Marfan Syndrome
Calle 34 No. 310, apto2
entre 3ra y 5ta, Miramar
Ciudad de La Habana 11300
Cuba
Fax: ++337 330145
Denmark
Ms. Bodil Davidsen
Danish Marfan Association
Frederikshave 34 st. th.
DK-3400 Hillerod
Denmark
Tel. ++45 4826 3652
Fax ++45 4826 3752
e-mail:
Finland
Leila Raninen
Finnish Marfan Association
PO Box 1328 SF-00101
Helsinki, Finland
Telephone: ++35894171727
e-mail: i
France
Annette Belloncle
Association Syndrome de Marfan Amis d'Antoine (A.S.M.A.A.)
B.P. 63
F-95160 - Montmorency
France
Telephone/Fax: ++33 139 64 56 12
e-mail: Paulette Morin
Association Française du Syndrome de Marfan (A.F.S.M.)
13, Allee des Terasses
F-77200 Torcy
France
Tel. ++33 164620375
Fax ++33 160 057 910
e-mail:
Germany
Marfan Hilfe (Deutschland) e.V.
Post Box 0145
D-23691 Eutin
Germany
Tel: ++49 4521 8305035
Fax: ++49 4521 8305034
e-mail:
Greece
Xanthi Zafiris
Greek Association of the Marfan Syndrome
Saliverou 5 N. Filothei
Marousi Athens Greece
Tel: 0113-093-217-9451
Fax: 0113-010-685-4051
e-mail:
Ireland
Mary O'Driscoll
Marfan Syndrome Support Group Ireland, Ltd
78 Whitehorn Drive
Palmerstown, Dublin 20
Ireland
e-mail:
Italy
Silvia Salice
Associazione Vittorio
Strada alla Villa d'Aglié 23/3
I-10132 Torino
Italy
Telephone/Fax: ++39 11898 0995
e-mail:
Japan
Yoko Shimozaki
Marfan Network Japan
Higashi-nakashinjuku2-1-23
Kashiwa, Chiba
Japan
Tel 81-4-7169-3484
FAX 81-53-454-6764
e-mail:
México
Olga Amador
Sindrome de Marfan de Mexico A.C.
Insurgentes 319,
303, Piso 3
Bosques de Las Lomas
Mexico D.F. C.P. 05120
Mexico
Tel: 55 5245 2260
e-mail:
Netherlands
Peter Alkemade
Contactgroep Marfan Nederland
Buitenkamp, 3
NL-7429-AV Colmschate
The Netherlands
Tel: ++31 570 56 46 91
e-mail: l
Norway
Wenche Snekkevik
Marfanforeningen co/FFO
PB 4568
0404 Oslo, Norway
Tel. 47 - 46 66 00 06
E-mail:
Perú
La Asociación Peruana del Síndrome de Marfan (APSIM)
Cecilia Delgado Tello
Calle Carlos Aguirre 189 – 301.
Urb Prolongación Benavides. Santiago de Surco.
Lima. Perú
Telefono : (511) 2743767
e-mail:
Web site:
Poland
Polish Marfan Association
Swietojanska 49/17
PI-81-391 Gdynia
Poland
Telephone: ++48 601286245
Fax: ++48 58 629 4425
e-mail:
or: .p l
Singapore
Willie Loh Chung Wei
Blk 471 Ang Mo Kio Ave 10 #11-774 SE 560471
Republic of Singapore
Telephone: + 65 9145 5708
e-mail:
Singapore Marfan Support
e-mail:
Slovakia
Maria Dusinska
Slovak Marfan Association
Institute of Preventive and Clinical Medicine
Limbova' 14
SK-83301 Bratislava
Slovakia
Tel: ++42 12593 69270
Fax: ++42 12593 69270
e-mail:
South Africa
South African Marfan Syndrome Organisation
(Suid-Afrikaanse Marfansindroom Ondersteuningsgroep)
P.O. Box 7294
Pretoria
0001
South Africa
Telephone:(+27) 11 333 3894
e-mail:
Online Marfan Syndrome diagnosis tool:
Spain
Damelys Fumero Uzcanga
SIMA, ASOCIACION SINDROME DE MARFAN
TRAVESIA ARBOLANTXA 12 4º D
48004 BILBAO
[1]
0034 648 035 180 (Se atienden los martes y jueves de 10:00 a 12:00)
Sweden
Karin Olsson
Svenska Marfanföreningen
c/o Ulla Frick
St. Eriksgatan 50 A
112 34 Stockholm
Sweden
Tel: +46 8 651 3609
e-mail:
Switerland
Marfan Stiftung Schweiz
Marktgasse 31
CH-3011 Bern
Switzerland
Telephone: 41 31 312 11 22
Fax: 41 31 312 11 20
e-mail:
Syria
Mohammad Mouchli
Tel:00963-11-6664647
Tel:00963-11-6662864
P.O.Box:16428 Damascus -Syria
Email:
United Kingdom
Diane Rust
Marfan Association UK
Rochester House
5, Aldershot Road
Fleet, Hampshire GU51 3NG
United Kingdom
Telephone: ++44 1252 810472
Fax: ++44 1252 810473
e-mail:
United States
Carolyn Levering
National Marfan Foundation
22 Manhasset Avenue
Port Washington, New York 11050
USA
Telephone: ++ 516-883-8712
++800-862-7326
Fax: ++516-883-8040
e-mail:
World Organizations:
Beatruce Preston
Chairman
European Marfan Support Network (EMSN)
Römerweg 4
CH-4410 Liestal
Switzerland
+41 61 921 91 89
e-mail:
Priscilla Ciccariello President
International Federation of Marfan Syndrome Organizations (IFMSO)
c/o National Marfan Foundation
22 Manhasset Avenue
Port Washington, NY 11050
e-mail: